Upcoming talks and activity:
Invited webinar with Dr Jan Charbonneau for Genomics Aotearoa (September 2023).
Invited online presentation – Dr Andelka M. Phillips and Dr Jan Charbonneau at SING Australia Workshop – 4th to 8th December 2023– Presentation on ethical considerations of genetic testing
2024 – Invited webinar with Dr Jan Charbonneau for University of Melbourne HLEN series (details to come).
Past talks and activity:
2023:
Andelka M. Phillips, ‘Owning me, owning you – How private companies acquire rights in our most intimate data’ Workshop: The Future of the Global IP System, Vancouver, Canada, (28-30 June 2023).
Invited webinar for Privacy108, Andelka M. Phillips, ‘Buying yourself online – an introduction to privacy issues with online DNA testing’ (8th February 2023)
Digital Privacy Panel – University of Queensland, organised by Justice and Law (JATL) – 7th March 2023.
Invited online seminar for the University of Aberdeen (13 February 2023).
2022:
Andelka M. Phillips and Jan Charbonneau, ‘Think before you click, spit, and share consumers’ genetic privacy perceptions in the context of direct-to-consumer genetic testing’ Privacy Foundation New Zealand, the Office of the Privacy Commissioner together with the Faculty of Law at Te Herenga Waka—Victoria University, (7th December 2022) – you can register here
Andelka M. Phillips and Samuel Becher, ‘Clicking Away Rights in DNA: Risks for Consumers in the Context of Personal Genomics’ Australasian Consumer Law Roundtable, Wellington, New Zealand, (1st December 2022).
Andelka M. Phillips and Jan Charbonneau, ‘Consumer Perceptions of Genetic Privacy: What NZ And Au Consumers Believe’ Australasian Consumer Law Roundtable, Wellington, New Zealand, (1st December 2022).
Andelka M. Phillips, ‘I trust you to only use my genetic data for these purposes…’ Symposium on Aotearoa’s Digital Potential and the Future of Commercial Law in a Disruptive World, Auckland, New Zealand, (9th November 2022).
Andelka M. Phillips, ‘They are using my data for what?’ TeLENZ 2022 New Zealand Symposium on Law and Technology (8th September 2022)
Andelka M. Phillips and Jan Charbonneau – NZ Government Legal Network Seminar (18 October 2022).
Here’s the recording of my recent UNSW seminar for the UNSW Allens Hub for Technology, Law and Innovation and the IEEE Society for Social Implications in Technology (Australia Chapter) (IEEE SSIT) Challenges for a Cyber-Physical World online seminar series
WordPress: https://lnkd.in/gPbSKba2 and YouTube: https://lnkd.in/g978xtNm
Andelka Phillips and Wendy Grossman, ‘The Opposite of Severance’ – Gikii Iceland, 6th July 2022 – link to conference programme
Andelka Phillips and Jan Charbonneau, ‘By signing up to learn about my health and ancestry, I became a suspect in a murder investigation…’- Gikii Iceland, 7th July 2022 – link to conference programme
Joint sessions with Dr Jan Charbonneau: WS #131: Exploring Privacy Perceptions and Understanding in the Context of Personal Genomics and WS #143: Exploring Privacy Perceptions and Understanding in the Context of Personal Genomics (Repeated) Rotorua GP CME 2022 (11 June 2022) – link to conference programme – conference held 9th to 12th June 2022
Invited talk, Andelka M. Phillips, ‘DNA and wearables: risks for consumers at (Legal)’ Challenges for a Cyber-Physical World, International Symposium (24-25 March 2022), organised by Dr Kayleen Manwaring – UNSW Allens Hub – recording available here
Invited seminar, ‘Buying Your Genetic Self Online’ Oxford Medical Law and Ethics Discussion Group seminar series, 4th February 2022.
2021:
Invited seminar, ‘Buying your Genetic Self Online – an introduction to the personal genomics industry and online contracting’ UCL Centre for AI Seminar series (1 December 2021).
First and Second Chair at sessions at Gikii 2021(details to come, 13th and 14th September 2021) http://www.gikii.org/gikii-2021-draft-timetable/
Member of the Programme Committee for the 8th International Workshop on Genome Privacy and Security (GenoPri’21) Workshop to be held in September 2021 (link to conference website).
Presentation and paper – Andelka Phillips and Samuel Becher at the Data Rights and Private Law Colloquium (November 2021).
Invited chair for session 4 Contemporary Challenges in Outer Space Law at Virtual Outer Space Law Conference, 3rd September 2021, (Waikato University).
2020:
Andelka M. Phillips, ‘Patients and Consumers, Personal Genomics in the age of COVID-19’ Australasian Consumer Law Roundtable (3 to 4 December 2020)
Invited speaker at South GP CME (14 August 2020) http://www.gpcme.co.nz/south/speakers.php
Andelka M. Phillips, ‘Your Health and Fitness Data Can And Will Be Used Against You’ Virtual GikII (31 July 2020)
2019:
Speaker at the Consumer Law Roundtable Program organised by Melbourne Law School on December 4th, 2019 (Melbourne, Australia), programme available here
Invited speaker, EHiN 2019 conference, (12th and 13th November 2019, Oslo, Norway) (link to conference website) – link to bio on EHiN site
Invited seminar for NYU Engelberg Center on Innovation Law and Policy (IPNY) Series – ‘Buying your Genetic Self Online’ (29th October 2019, 6:15pm, New York, USA) – information on this event available here
Invited seminar at School of Biomedical Informatics at the University of Texas Houston on the 15th of October 2019 (Houston, TX, USA).
Invited seminar at Vanderbilt University in the week of October 14th, speaking on October 17th 2019 – link
Speaker at GenoPri 2019 in Boston, USA, 21-22 October 2019 – (joint paper) Andelka Phillips and Jan Charbonneau, ‘Is perception reality when it comes to genetic privacy online?’ (Boston, MA, USA).
Member of the Programme Committee for 6th International Workshop on Genome Privacy and Security (GenoPri’19) (Boston, USA, 21st and 22nd October 2019, this is co-located with GA4GH 7th Plenary Meeting, The Hynes Convention Center, Boston, USA ) (link to conference website)
Invited speaker for Direct-To-Consumer (DTC) Genetic Testing: What needs to be done to get this Business “Morally Right”? A workshop at Georgetown University September 12 and 13, 2019 – Andelka M. Phillips, ‘Regulating Personal Genomics – Contracts and Privacy’ (Washington, DC, USA)
Invited speaker at the Identity conference in panel on DNA and profiling (this conference will be held in Wellington, NZ on 26th and 27th August 2019).
Invited speaker for the New Zealand Privacy Commissioner’s PrivacyLive Forum ‘Your DNA is only a click away – An introduction to the personal genomics industry’ (Auckland, New Zealand, 20th June 2019, 12:30pm – details of this event are available here
Invited seminar, ‘Purchasing Your Genomic Self Online -an Introduction to the world of Personal Genomics’ – Bioethics Institute, University of Ghent, Gent, Belgium (23rd May 2019, Gent, 4pm) http://www.bioethics.ugent.be/news
Invited seminar, ‘Legal Challenges of AI in healthcare’ Faculty of Medicine, University of Ghent, Gent, Belgium (closed session) (22nd May 2019, 5pm).
Invited speaker at Personal Genomics (public event in London, UK) (16th May 2019, London, 7pm).
Invited seminar, ‘Your DNA is only a click away – Personal Genomics, Privacy, Security, and a call for reform‘ University of Oxford Cyber Security Seminar Series, University of Oxford, Oxford, UK (15th May 2019, 2pm).
Invited seminar, ‘Buying Your Self on the Internet – an introduction to the world of Direct-to-Consumer Genetic Testing and Contracts’ – this is part of the Health Law Research Center’s Health Law Spring Seminar Series – Faculty of Law, Lund University, Sweden (7th May 2019, 1pm).
Invited seminar, ‘Reading the Fine Print: An Introduction to the World of Personal Genomics and Wrap Contracts’ Centre for International Law, National University of Singapore (3 May 2019). Link
2018:
Invited speaker at the International Privacy Forum organised by the Privacy Commissioner of New Zealand (4th December 2018).
Member of the Programme Committee for the 5th International Workshop on Genome Privacy and Security (GenoPri’18) (link to conference website)
Andelka M. Philips, ‘Genetic testing kits: Privacy, secondary use and other legal risks’ Privacy Laws & Business 31st Annual International Conference Navigating GDPR: The art of the possible (2-4 July 2018, St. John’s College, Cambridge, UK) – presentation on the 2nd of July 2018. (link to conference programme) – videos of conference presentations available here
Invited seminar for the University College London’s (UCL) Information Security Group (Department of Computer Science) ACE Seminar Series, entitled ‘Of Contracts and DNA – Reading the fine print when buying your genetic self online’, (London, UK) 17th May 2018. See here for further details Of Contracts and DNA – Reading the fine print when buying your genetic self online
Speaker at CPD ‘Getting Ready for the GDPR’ held by Trinity College Dublin Law School’s Technology, Law and Society Research Group in Trinity’s Long Room Hub (9th May 2018) – Andelka M. Phillips, ‘Reading the fine print – direct-to-consumer genetic tests – privacy policies and electronic contracts’ (9th May 2018).
Invited lecture entitled ‘Buying Your Self on the Internet: Wrap Contracts and Personal Genomics’ for Peter A Allard School of Law Faculty Colloquium, Peter A Allard School of Law, UBC, (Vancouver, Canada) 4th January, 2018
2017:
Andelka M. Phillips and I.S. Mian, ‘Governance and Assessment of Future Spaces: A Discussion of Some Issues Raised by the Possibilities of Human-Machine Mergers’, conference presentation for Data For Policy Government by Algorithm? Conference, London, UK, September 6th to 7th, 2017. This is joint work, but I was the sole speaker. Link
2016:
Invited seminar for the University of Toronto’s Health Law, Ethics & Policy Seminar Series ‘Contracting Away DNA – Direct-to-Consumer Genetic Tests for Health, Love, and More…’ (Toronto, Canada, 17 November 2016).
Invited seminar for Oxford’s Medical Law and Ethics Discussion Group, ‘Buying your Self on the Internet: Wrap Contracts and Personal Genomics’ University of Oxford, Oxford, UK (26 October 2016)
Andelka M. Phillips and I. S. Mian, ‘I should probably tell the fridge to stop looking at me because the toaster is getting jealous’ – presentation at GikII London, UK (30 September 2016)- slides available here
Invited Seminar for the University of Edinburgh’s IP/IT/Media Law Discussion Group, ‘Wake Up and Smell the Coffee! A FLE5SH approach to new and emerging technologies … beyond “Responsible Research and Innovation’ (Edinburgh Law Faculty, University of Edinburgh, Edinburgh, UK, 8th February 2016) – joint work with Professor I. S. Mian and Jan Charbonneau, but I was the sole presenter.
Andelka M. Phillips and Jan Charbonneau, ‘Giving away more than your genome sequence?: Privacy in the Direct-to-Consumer Genetic Testing Space’ American Federal Trade Commission’s PrivacyCon (Washington, DC, USA, January 2016).
Presentation for Surveillance: Power, Performance & Trust (7th Biannual Surveillance and Society Conference) Barcelona, Spain (April 2016)- joint work with Professor I. S. Mian and Jan Charbonneau, but I was the sole presenter.
2015:
Presentation at Early-Careers Researchers Symposium on Cyber Security, ‘Direct-to-consumer genetic testing T&CS’ (Cyber Security Centre, University of Oxford, Oxford, UK, 30th September 2015) – link to agenda.
Presentation at Gikii conference, Andelka M. Phillips, I.S. Mian and J. Charbonneau, ‘Molecule say ‘hello’ to molecule’: Technological Innovation under the Microscope’ (24th September 2015, Berlin, Germany).
Invited Workshop leader with Teresa Finlay for HeLEX’s Translation in Healthcare – Exploring the Impact of Emerging Technologies conference, ‘DNA a click away: “agreements” in DTCGT’ Oxford, UK (25th June 2015) – link to conference agenda.
Invited Presentation at King’s College London, ‘Combing through the fine print – a journey into the world of DTC Genetic Testing Contracts’ London, UK (19th June 2015).
Presentation at GenoPri (The 2nd Workshop on Genome Privacy and Security), ‘Genomic Privacy and Direct-to-Consumer Genetics – Big Consumer Genetic Data – What’s in that Contract?’, (San Jose, California, USA, 21st May 2015).
Presentation at NDPH Symposium, ‘Don’t think, just click – a quick walk through the typical DTC genetics contract’ (Nuffield Department of Population Health Annual Symposium, Oxford, UK, 14th January 2015).
2014:
Invited Seminar for University College London (UCL) Computer Science Faculty, entitled ‘Genetic Testing Goes Online An overview of the industry and the challenges for regulators’ (UCL, London, UK 12th September 2014) – link to list of seminars.
Invited Presentation at the SCL Technology Law Futures Forum, (London, UK, 26th June 2014) – link to agenda.
Student Fellowship and Poster Presentation for Molecular Medicine Tri Conference, Poster no. 97. (San Francisco, CA, USA, February 2014).
2013:
Poster Presentation for Consumer Genetics Conference, Poster no. 8 (Boston, MA, USA, 25th to 27th September 2013).
Presentation at GikII Bournemouth, ‘Direct-to-consumer genetic testing, what exactly are you signing up for?’ GikII Conference, (Bournemouth University, Bournemouth, UK, 16th September 2013) – link to conference programme
Short Talk & Poster Presentation for Human Genomics and Personalized Medicine (E3) Symposium, (Stockholm, Sweden, 20th June 2013) – link to agenda.
Presentation and bursary for The Fifth Northumbria University Information Rights Conference: CHANGING NOTIONS OF PRIVACY (Newcastle, UK, 1st May 2013).
Invited Seminar for OxPILS at Balliol College, ‘Direct-to-Consumer (DTC) Personal Genome Testing and Consumers’ Rights – What Are You Signing Up to When You Purchase a DTC Genetic Test?’ (University of Oxford, Oxford, UK, 7th March 2013).
Presentation ‘Direct-to-Consumer (DTC) genetic testing: Now, it is time to discuss the ethical and legal issues’, Postgraduate Forum in Genetics and Society’s Regional Meeting at Oxford ‘Emerging Themes in Clinical Genethics’ (University of Oxford, Oxford, UK, 8th June 2012).
Related information including posters:
